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He is one of the children to whom the Ministry of Public Health promised that the dose of Zolgensma will be applied.
PORTOVIEJO
This Tuesday, October 26, little Derek was admitted to a hospital in Quito, one of the three children with problems of spinal muscular atrophy (SMA) to whom the Ministry of Public Health (MSP) promised that the dose of Zolgensma, considered the most expensive drug in the world, since its cost is 2.1 million dollars.
The announcement was made by his mother, Génesis Pinargote, who along with her family is in the capital for the process of applying the medicine.
“My beautiful beautiful boy, Derek, you cannot imagine how much I have dreamed of this day, how much I have begged God to give me the opportunity to have you by my side and continue to take care of you, this day will be marked as the beginning of a new life. that God has allowed you for his glory, “said Pinargote on his Facebook account.
Pinargote together with his family began in 2021 a campaign to collect the 2.1 million dollars to be able to acquire this drug, and for this he announced that collaboration through social networks.
In her story, the mother acknowledged that they faced difficult and bitter situations, but she also thanked the current head of the MSP, Ximena Garzón, and other authorities of this current regime for the help provided to obtain the dose for her son and two other children who have SMA.
SMA is a genetic problem that does not allow normal muscle development and that, if it is not treated properly, could cause death in the first years of life. Derek will be one year old on November 7.
There were children who did not manage to have the opportunity to be announced that the Government would assume the treatment and purchase of the medicine. On July 15 of this year, the youngest Ian died waiting for the so-called most expensive medicine in the world; Two days later Amberly died, who also suffered from this genetic disease that generates limitations in the motor neurons that control the movement of the body. (I)
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