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The prosecutor’s office will check the reason for the refusal to treat a three-year-old child with spinal muscular atrophy (SMA) from Krasnodar. This is stated in the press service of the regional supervisory authority.
The prosecutor’s office added that they would evaluate the completeness of the measures taken by the Ministry of Health of the Krasnodar Territory to provide the child with a drug.
The regional operational headquarters, however, claims that the decision on the advisability of prescribing Zolgensma to a child with SMA was made by a federal commission.
Earlier, the media reported that a three-year-old resident of Krasnodar, suffering from SMA, was denied the appointment of Zolgensma. At the same time, the boy’s parents collected 121 million rubles with the help of philanthropists for an injection with this drug. The fund of the Yekaterinburg politician Yevgeny Roizman, who took the child into care, closed the collection in five months.
However, the treatment of “Zolgensma” was denied. Svetlana Artemyeva, chairman of the medical council, curator of the register of patients with spinal muscular atrophy in Russia, told the child’s father that this was “not advisable.”
Yevgeny Roizman called the actions of the Ministry of Health vile. In his opinion, high-ranking officials are interested in the treatment of SMA with Spinraza and Risdiplam. The politician recalled that Spinraz drugs should be made all his life, and this is a lot of money, while Zolgensma needs to be delivered only once.
Source: Rosbalt
Tristin is an accomplished author and journalist, known for his in-depth and engaging writing on sports. He currently works as a writer at 247 News Agency, where he has established himself as a respected voice in the sports industry.
