Adalia Rose was born with progeria, also known as Hutchinson-Gilford syndrome.
The YouTube star who suffered from Benjamin Button disease in real life died on Wednesday at the age of 15 after inspiring millions with his videos.
Her family paid tribute to the teenager on Facebook and says that she “no longer has pain.”
Adalia Rose was born with progeria also known as Hutchinson-Gilford syndrome, children who suffer from it usually lead a normal life during the first months.
The condition, which affects fewer than 500 children worldwide, is classified as extreme accelerated aging and has an average life expectancy of 13 years. That disease was captured in the movie The curious Case of Benjamin Button played by Brad Pitt and tells the story of a man who would be born with the body of an 80-year-old person and who over time becomes younger.
In the statement, the family, who lives in Texas, detailed that “on January 12, 2022 at 7 pm Adalia Rose Williams was released from this world. She went into it quietly and quietly left, but her life was far from it. She touched millions of people and left the biggest mark on everyone who knew her. She no longer suffers and is now dancing to all the music she loves. I really wish this wasn’t our reality, but unfortunately it is. We want to thank everyone who loved and supported her. Thank you to all of her doctors and nurses who worked for years to keep her healthy. The family now wishes to mourn this great loss in private.”
Adalia’s mother, Natalia Pallante, told the New Zealand Herald in 2018 that doctors realized something was wrong within months of her birth. “When Adalia was born, I think she was about a month old and they weren’t happy with her growth,” he said. “That was one of the symptoms that appeared first and then it was also that the skin on her belly was very tight and it had a different look.” Three months later, he received the diagnosis and soon began to lose his hair. His veins also became visible and his skin thinned.
“I was a single mom at the time, so when I got the diagnosis I was on my own. It was just her and me, and honestly I felt lost, “said Natalia. Over time she met her husband Ryan and Adalia had several siblings.
Ryan said: “We don’t even say the word ‘progeria’ very often, we just treat her like a normal 11-year-old girl and try to give her the best life.” Adalia has struggled, and her mother said the teenager sometimes wished she could ‘look like everyone else’ and ‘be able to do what everyone else can do’. “But then she’ll say, ‘Who needs hair anyway? I have a lot of wigs, I can have different hair every day,’” she said. Natalia on that occasion described Adalia as ‘unruly’ and said that she loved watching her grow up.
The couple has three other children. (I)
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