Boy with butterfly skin wakes up from coma after 16 days and the hug with his mother softens on social networks

“Mommy.” The tearful cry of a child lying in a hospital bed hurts. It moves and makes you cry. The little boy opens his arms, trembles, cries and waits to be comforted by his mother.

The woman who entered the room after running down the hall has her heart in her mouth. The child hugs her and they both begin to cry… the child receives its mother’s protection and she receives from the child the strength she needs to ease the pain.

The crying baby has come back to life and so tears roll down Tayane Gandra’s face. Your child has returned, as you prayed, from a disturbing coma in which he spent 16 long days.

Child emerged from coma after 16 days

Guilherme, as the boy is called, has a disease called “butterfly skin.” The mother told the Globo channel, from Brazil, that “Gui” looked very bad a few days ago because of pneumonia and was in a coma for 16 days.

The child was sedated, intubated and because of the severity, the doctors had suggested that a tracheostomy could be performed on him.

“I told the doctor that my God is the God of the impossible. She told me I was optimistic, but the surgery would be necessary,” said the mother, quoted in Caraota Digital.

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“Wake up from a good night’s sleep”

“It’s been 16 days without leaving your side and the only day mom goes home to sleep, you decide to wake up from your restful sleep,” the woman wrote in the message that went around the world and brought thousands to tears . users of social networks.

“Thank God he woke up from this nightmare and all the doctors celebrated, because no one understood how his trachea was intact, with the disease that he has. This is an impossible God who healed my son,” she said with conviction and faith.

What has “Gui”: what is butterfly skin?

Tayane Gandra explained that her 8-year-old son “has a rare disease called dystrophic epidermolysis bullosa that was discovered at birth”. They call it more “butterfly skin”.

The woman, as reported by the press, explained that “Gui” has “butterfly skin” because it resembles the insect’s wings. “Although it is very fragile, it is very strong. He already has an understanding of the care he needs to take with himself,” he stressed in a video posted on his social media.

According to Infobae, bullous epidermolysis is “a group of skin diseases that is genetically transmitted and characterized by the appearance of blisters, ulcers and wounds on the skin. The sensitivity is such that the care is permanent. It affects one or two people for every 50,000 inhabitants.”

Symptoms of epidermolysis bullosa or butterfly skin

The symptoms, according to the Mayo Clinic, are:

The blisters, that institution explains, “can appear as a result of minor injuries from heat, friction or scratches. In severe cases, the blisters can form inside the body, such as on the lining of the mouth or stomach.”

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In networks they cry with the mother of “Gui”

The video leaves everyone in tears and thanks, along with the mother, for the “miracle”.

Fernanda Doblev: “And he says I’m fine while crying… how strong that baby, how strong that mother. My prayers are with you.”

Sister Rondón: “Open prayers and a fountain of blessings.”

I ask God that all the tears you shed today will become beautiful joys full of health and happiness tomorrow for such a beautiful baby.

Josefina Martínez, network user

Ricardo Strada: “Maternal love is infinite.”

“Thank you, my God, for doing the miracle, God takes care of him and always protects him,” Zorisabel asked.

For the mother of this brave child, “there is not a day when there is not a new injury (…). When there is not a total break in the skin, it is like a bubble. Bubbles are made where we must burst, filter so that this bubble does not spread and does not become a bigger wound ”.

Gandra, despite her tiring day to day, thanks and trusts: “You are our most beautiful miracle, thank you for being so much of us, we love you to infinity and beyond.”