The Economic Commission of the Congress of the Republic officially began the debate on the creation of a High Cost Fund to solve the health coverage crisis for patients with rare and expensive diseases.
The high incidence of high-cost diseases is a significant challenge for public health in Peru. Currently, rare and orphan diseases, as well as cancer, are those that affect the population the most.
According to the Association of Urea Cycle and Metabolic Disorders (Adcum), rare and orphan diseases (ERH) constitute an important problem. About 2.5 million Peruvians suffer from some ERH, the majority being degenerative.
“What is allocated to people, to their health, is not an expense, on the contrary, it really constitutes an investment, given the worrying gap in the financial coverage of high-cost diseases in the Peruvian health system,” said Miriam. Ramirez, director of Adcum.
High Cost Fund: patients in favor of the law
The Working Group organized by the Economy, Banking, Finance and Financial Intelligence Commission, directed by the advisory cabinet of said parliamentary body, socialized the creation of the fund under the motto “Alternative solutions for the lack of financial coverage for diseases of high price”.
Indyra Oropeza, president of Con “L” de Leukemia, emphasized the importance of timely access to diagnosis and treatment, and gave the advisors of the Economy Commission a copy of the ‘Debrott Report’, which recommends the implementation of a High Cost.
According to the Economic Commission, this fund represents a unique opportunity to propose concrete and viable solutions, aimed at guaranteeing that all Peruvians have access to the treatments they need, “regardless of their place of origin, the public system where they are treated, or the complexity of the disease.
“This approach is already in operation in countries in the region such as Uruguay, Chile and Colombia, serving to close the health gap,” said Adcum.
The data
- High-cost diseases, including rare and orphan diseases, represent a serious public health problem in Peru.
- Comparatively, in Uruguay approximately S/16 per inhabitant is allocated to treat these diseases, while in Peru, only S/4.6 per inhabitant is barely reached.
Source: Larepublica
Alia is a professional author and journalist, working at 247 news agency. She writes on various topics from economy news to general interest pieces, providing readers with relevant and informative content. With years of experience, she brings a unique perspective and in-depth analysis to her work.
